Showing posts with label Alzheimer's Disease. Show all posts
Showing posts with label Alzheimer's Disease. Show all posts

Tuesday, October 8, 2013

Determining what Elder care is needed & considerations for placement

Caring for an aging parent, spouse, partner or close friend presents difficult challenges – especially when a crisis hits and you are suddenly faced with the responsibilities of elder care. Perhaps your  mother fell, is hospitalized with a broken hip and needs to go to a skilled nursing facility to recover.

Caregiving can also begin as a result of unsettling warning signs that indicate a need for some sort of intervention.   Perhaps your elderly spouse has wandered off and gotten lost. Or a friend has lost a lot of weight and rarely leaves home. You may be the only person to step in and become the caregiver. Or, you may be the key in a network of family members and friends willing to help. Whatever the situation, you may not be sure of the next step to take.
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What kind of help does your loved one need? Perhaps there are underlying undiagnosed causes that can be corrected.  For example, prescription drugs interactions/side effects, Vitamin B12 deficiency, dehydration, low thyroid, urinary infection and other treatable problems are often mistaken for Alzheimers  or  dementia. According to Consumer Reports on Health, "Any new health problem in an older person should be considered drug induced until proven otherwise." A visit to the primary care physician is critical to rule out any underlying causes and determine the best approach to care.

If the problem is not correctable, what living arrangements are available for your loved one? What nursing care plans are most appropriate? If they are able to remain in their own home, what kind of services can be arranged? Is assisted living preferred over a nursing home? What challenges does your loved one's condition pose? How will both parents get their needs met when they both need different levels of care?  What community resources are available? How will you manage it all – and still maintain a life of your own? Who will make all these decisions? 

Hopefully, the individual has made good life preparations by having a POLST and durable power of attorney for healthcare and financial matters already established.  If not, these documents should be formulated as soon as possible.  The primary care physician will assist in obtaining the POLST form which indicates the person's personal preference for resuscitate or Do Not resuscitate.  Family members often self-designate one responsible person to make the financial and healthcare decisions, or, they may utilize group consensus. 

Of course, each elder care situation is unique. Your loved one's medical condition, financial resources, personality, personal wishes, relationships with potential caregivers, geographic proximity to services and other factors all determine what best approach to take. There is no place like home or maintaining one's usual routine, but when a change of medical condition occurs compromises must be made in order to provide optimal care within your loved one's financial constraints.  If the condition has potential to improve, it is wise to consider temporary measures that can easily transition to permanent if needed.  Conditions requiring daily skilled nursing and/or therapies should be cared for in a Skilled Nursing Facility.  If nursing and therapy is required on an intermittent or several days/week basis, then return to home with home health support services could be considered. 

Meeting one's daily needs at home despite not needing a nurse or therapist can be challenging.  There are meals to prepare, housekeeping, bills to pay, medicine to refill and dispense, personal care to manage and transportation to arrange.  Those who are alone could be monitored with safety monitors or periodic visits and phone calls, but often times isolation becomes problematic.  If care and supervision needs are overwhelming for family/ friends or other providers to safely accomplish within your loved one's budget, then placement out of the home should be considered.

 RCFE's (Residential Care Facilities for the Elderly) can be large communities, or small 6 bed homes; many offer dementia and hospice care.  Those key people who are involved in placement decisions should weigh future needs (depending on the disease process) to minimize the trauma of any future transfers.  Physical and mental needs as well as compatibility with others are important when looking at any communal living situation.  Look closely to the daily program, menu and services to determine if there is enough structure and flexibility to meet your loved one's current and future needs.  Meet the administrator and staff; are they loving, caring, patient, consistent and communicative?  Don't be tempted to make your decision based solely on the look of the room or the building.  Ask how your loved one will get to medical appointments or receive hair/nail care.  Will the program satisfy all the physical, mental, social, emotional and spiritual needs?

Minimizing the institutional nature of a facility while maximizing dignity, choices and quality individualized care can be challenging when caring for those with complex medical conditions including dementia.  When your loved one's condition requires a higher level of care that cannot be safely or appropriately managed in an RCFE, placement in a skilled nursing facility will be necessary.  Another close look at the daily program, menu, services and staff in addition to the environment and activities will help you decide if the facility will be compatible for the patient as well as the family.  Make sure the location is convenient for family and fiends to easily visit, and that your preferred physician will be able to continue providing care.

Please note that referral agencies may be timesaving and helpful in narrowing your choices, but they do not guarantee personal knowledge of the properties and may engage in unfair commission practices or have a conflict of interest with preferred properties.  Facility or healthcare insurance social workers may be more fair and accurate in their suggestions; asking local agencies on aging or recommendations from other friends/family members can also assist in guiding you. Take your time, tour more than three facilities and meet with as many staff and administrators before making your decision; you will be establishing a new relationship with the facility & staff that will hopefully last for many years. 

Please feel free to visit my website to compare what RCFE small 6 bed facilities can provide for your loved one.  www.VillaCareHomes.com  We provide service with personal attention and dignity, loving caring staff and the facility is managed with program structure/customized approach to aging in a home environment.  We cultivate an atmosphere of friendship, comfort and consideration of our residents, visitors and neighbors.  We encourage an independent lifestyle for those with even complex medical conditions so that our residents can maintain their independence while leaving the difficult tasks of daily living to our dedicated and competent staff.  This is the standard you should seek when determining what care is needed for your own loved one.


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Friday, September 27, 2013

WHAT IS SUNDOWNING AND WHAT CAN BE DONE?

Anyone with acute or chronic confusion may become more confused, restless, agitated and anxious in the late afternoon and especially after dark when the sun goes down or seasonally when there are fewer hours of sunlight.  This may happen whether the person is living at home ore in a facility.  The sundowning behavior can worsen following a move or change in routine.  Individuals with sundowning behavior become more demanding, upset, suspicious, disoriented and see, hear, believe things that aren't real or pace/wander.

Those with Alzheimer's Disease act as if their biological clocks are "reset."  These individuals may stay up all night alert and full of energy despite all interventions to encourage them to sleep in bed; then, they will continually doze on/off during the day.  The reasons for these changes in the sleep-wake cycle in Alzheimer's Disease is not known.

The reason for sundowning behavior is also not known. One theory is that there are fewer environmental clues at night when daylight and eyesight is diminished.  Some scientists believe it may be related to the biological clock in the brain which regulate the amount of hormones and other chemicals important for brain function.  If the biological clock is not properly functioning, the brain itself may not be able to properly function as well.

What can be done for those with abnormalities to the sleep-wake cycle?  It can be a very frustrating problem to deal with, but the following suggestions may be worth a try:

1) ACCOMODATE TO THEM.  Granted, this may be the most difficult and costly approach.  Accommodating to the person's new routine must include keeping them in a locked/secured environment and awake night staff for full supervision as well as ongoing stimulation during their awake periods. They could rest and snooze throughout the day to insure they are adequately rested.

2) MEDICATIONS.  It may be appropriate for the doctor to review all medications to consider discontinuing any non-essential medications which may have an effect on sleep.  Other medications that may reduce anxiety, relax muscles or induce sleep may be considered.

3) ASSESS PAIN.  Pain keeps people from sleeping, or may wake them up from sleep.  With some forms of dementia, communicating or expressing one's pain may be impaired.  Those with complex medical problems in addition to dementia may also be affected by musculoskeletal or other source of pain.  In some cases, a trial of a relatively benign pain medication such as Tylenol may be justified.  If sleep problems are in part due to arthritic pain, aspirin or Tylenol may decrease musculoskeletal pain so that the person can sleep more comfortably.

4) ADDRESS NIGHT TIME TOILETING.  Many older persons awaken many times a night to urinate and then are unable to return back to sleep.  Identify if there might be a urinary infection, provide a bedside urinal or commode to minimize walking through the house activity.  With less physical activity involved to manage night time urination, individuals may fall back to sleep more easily.

5) UTILIZE NIGHT LIGHTS.  Elderly individuals may also have low vision which is exacerbated at night.  A small night light helps to orient and minimize agitation if the individual wakes up and becomes frightened by strange surroundings.  Night lights can also be placed to mark the pathway to the bathroom.

6) KEEP A STANDARD, DAILY ROUTINE.  While caregivers may change from day to day, it is helpful to keep a standard daily routine for any individual with dementia.  A standard daily program for wake-up time, meals, medications, toileting and bedtime routines should be followed by all caregivers to provide consistency.  The daily routine should also include physical activity and other mentally stimulating activities which will help to reset the awake-sleep cycle as well as maintain optimal function. A consistent program reduces anxiety so that an individual will also learn to anticipate what will happen next rather than begin to worry or become anxious wondering when they will eat, get their meds, toilet or go to bed.  Make a written program which is followed by all caregivers 7 days/week.